The Mesothelioma Applied Research Foundation
Volunteer of the Year for the Meso Foundation
I would like to thank the Mesothelioma Foundation for honoring Craig and I with this award. It meant a lot to Craig to know that he was receiving this prior to his death. I thank you for letting him know before he passed.
I would like to once again remember the volunteers that have been recognized by the foundation in the past with this award. Klaus Brock, Nancy Buzinski and June Briet. We are humbled to be named along with these amazing people.
There is also one other person that I would like to recognize and that is our daughter Emily. She was only 12 when her dad, her hero was diagnosed with this horrific disease. At her age she could have easily taken the wrong path as we travel back and forth from Missouri to NY for treatments. Instead she did nothing but make us proud. Graduating at the top of both her high school and college classes. So Emily it is because of you, that dad and I could take the time to help other people.
About 11 years ago we went to see Drs. Taub and Chabot after Craig’s diagnosis. As many are told, he was given 6 months to live. Through the determination of both of his doctors and Craig’s unmatched will, Craig not only LIVED with his disease but he inspired and gave hope to many. So the story of this award began way back then. I would like to give you a brief history of why I am standing in front of you today. Dr. Taub was always willing to push forward with treatments that were on the cutting edge. Craig was always willing to do whatever he had to stay alive and advance the science for those that followed. Thank you Dr. Taub for always being just a phone call away. Dr. Chabot. I know that Craig tested your skills more than once. But never more than in 2006. If it were not for you working on Craig for over 9 hours in the operating room and giving him that “slim chance” to make it through the night. Followed by Craig’s determination over the next 4 months in the hospital, he would not have been there this past December to walk Emily down the aisle at her wedding. We will be forever grateful to you.
Now about Mary Hesdorfer, who at the time was Dr. Taub’s assistant. If it were not for her I don’t think I would be standing here today. Craig and I were in the hall outside of her office when I told her, how I felt like I was plunked on another planet. How I felt nobody should have to go through this alone. Mary agreed and without hesitation asked if we would like to talk to other patients. Of course our answer was yes. Mary, who would have thought that one day our “little acorn” would have grown into a mighty Oak tree!! Little did we know that Craig and I would not only begin talking to Drs. Taub and Chabot’s patients, but that one day Mary would start working for the Meso Foundation and we would be talking to several other doctors patients as well. Just a voice at the end of a phone line...giving hope when they felt there was none. Craig often talked to patients about the protocols and what to expect from surgery and chemo treatments, even if he was in treatment or was healing from surgery himself. I learned from the best teacher and I will continue to do what I have done for the past 11 years. I will continue to be that voice on the end of the phone line as long as I am needed.
Now I would like to address another issue that is very important as well. As you can imagine, having just lost Craig this past April I am as angry at the disease as anyone in this room is. But what I would like to ask YOU to do is what I have done and that is to turn your anger into action for the Meso community. It would be easy for me to walk away from this disease, the Meso community and say: well I tried. Because, I have nothing at stake anymore. But that is not the case. I have come to love and care for so many of you and I also promised Craig that I would continue to fight for what is right…And that is finding a cure and stopping the importing of asbestos into the US. Raising $100,000 for research over a two year period was not done by me. It was through the generosity of family and friends and companies and fundraisers.
Getting started is the hardest part. Emily and I decided two years ago that Craig did not need more shirts or golf equipment for his birthday. What he needed was a cure for Mesothelioma. So we brainstormed and came up with an idea. Emily wrote a letter, including Craig’s story and asking for a donation in Craig’s honor to be sent to the Meso Foundation to The Craig Kozicki Grant. We said a heart would be placed in our kitchen for each donation sent. We sent that ONE letter to our Christmas card list, Craig’s work friends, Meso friends, everyone we could think of. That ONE letter raised almost $14,000!! We were 14% to our goal with one letter.
So many people over the years have asked me about fundraising. How do you do it? How do you get started? I say all you have to do is ask! So the last thing I am going to do tonight is hopefully inspire you, by showing you how easy it can be to start a fundraiser. This has never been done at a symposium before, so this is not an easy thing for me to do…but I am going to ask. Doctors, lawyers, pharmaceutical representatives, researchers, patients, caregivers, everyone in the audience. A bowl has been placed on the table outside in the hall. I am asking everyone to donate. Whether it is $5 or $50 or more, please give to the Craig Kozicki Grant, checks and credit cards are accepted!! However, if you would prefer to start your own Grant I would be even happier! Set a goal and start your own fundraising effort. The total amount collected will be announced tomorrow at breakfast.
Once again thank you again for this amazing honor. Craig and I were both humbled when we heard we were receiving this award.


These past two months (almost) have been filled with sooo many emotions I really could not put them into one blog as I know I would miss many. Today is going to be about finding Shelly. These past several weeks have been odd for me. I have never been just "Shelly". I was always mom & dad's Shelly or Craig's Shelly, but never JUST SHELLY!! It is strange. I am trying very hard to be happy in my own skin and finding MY place in the world.
This path has already found twists and turns that I hadn't expected, emotions I don't like to feel (but are very real), questions that I don't have answers for (yet), and feelings that I am not sure how I am suppose to deal with all of the time. But I am learning more and more about myself everyday. I think I am stronger than I gave myself credit, although I am not as strong as MANY of you think I am
I find myself wanting more for myself NOW! I am not a patient person....I guess I always knew that. I want to keep moving forward, even if it hurts. It does hurt to move forward, because by moving forward you give up little pieces of the past. Physical pieces that is. A simple example is taking Craig's name off countless accounts, forms and bills...each time I do this, it is like I am erasing him somehow.....I cannot begin to tell you how hard that is to do....
But, by doing all of these things I am having to learn to be me, just me. That is a scary thing sometimes. I can say I have made strides in some areas and baby steps in others, but I feel that I am healing and moving forward. I know that would make Craig happy and that will make me happy again one day too!!
Believing...Shelly
p.s. Emily and Kyle pick up their "baby" (puppy) on Saturday. She is VERY cute. Her name is Hazel and she is already about 10 pounds. Pictures will be posted by somebody when they get her.

Hi, Sissie-
LET'S GO RED WINGS!!! WHOOO HOOOOO!!! Awesome game last night. Don and Eva were there and said the crowd ERUPTED when Cleary scored! OSGOOD, OSGOOD, OSGOOD!!!! I was home screaming and jumping around, myself......now, on to the next series on Sunday!
You know, I still read this blog just about every day. It is so comforting to see how you are doing. I know it has been a source of comfort to you to express your feelings here. You wear your heart on your sleeve and it makes you appear so vulnerable and so real. You are and always have been sincere - no wonder you have so many friends who care and love you so much. I just cannot imagine how difficult this must be and yet you exhibit so much strength. I know you do not think you are strong - but you are stronger than you realize. After all you have been through and continue to go through, you are still an inspiration to many. I am so proud to call you my sister! I love you so muuuuccccchhhhh! (Now I'm crying!)
I just wanted to send a little love and support your way so you know we (the bloggers) are here and we do read and we do care - and as Craig would say, "Never give up!" well, that, and 'it is what it is' ![]()
Love you much,
Phyllis
There is Cleary . . . 
Then there is Devon . . .
My dad had a long list of redeeming qualities and at most, a couple flaws – his stubbornness happened to fall into both categories. On one hand, his stubbornness (which could better be described as determination or courage) gave him an incredible will to live, and therefore gave all of us many laughs, smiles and fond memories. It was also because of this stubbornness or determination, if you prefer, that I am not reading you a letter prepared by my dad specifically for this very moment.
Three days before my dad passed away, I shared with him a goodbye letter I had written to express my love and admiration for him as a father and a man. After a few emotional exchanges between us when I had finished my note, he looked up at me with those sincere blue eyes and said “Oh, I still need to get to my letters sometime.” With tears in my eyes, I hesitantly nodded my head, knowing of course due his deteriorating situation that sometime would be never. He wanted to write a few letters to leave behind, one of which was what he wanted read on this day in front of all of you. So I guess this example would fall under the category of his stubbornness being a flaw. Because my dad had such an amazing outlook and unwavering hope, he refused to give up on life, so he instead had to give up the letter he wanted shared today. The truth of the situation is that my dad fought hard until the very end, his stubbornness not only giving us years – but extra moments up until his last breath. Although I do not have a letter to read from him, I do have my best attempt at what I think he would have written – and of course many irreplaceable memories. I told him one night after he passed, that I would do my very best to express what I think he would have wanted to say – so one of his final wishes would not go unfulfilled.
My dad’s letter would be a perfect blend of wit, humor, gratitude and hope – combined for the intention of giving us peace, a little advice and permission to move forward with our memories of him close to our hearts. So in the following passage, I will attempt to write what my dad would have wrote. It is hard to capture the words of your father…the person you stared up at with adoring eyes while dancing on his feet, the person you smiled at in the stands in a basketball game eager for approval, the person who inspired you and so many others to appreciate life, the person who made you want to be successful, want to be courageous and want to be just like him. My dad made me complete and gave me all the love, affection and warm memories a child could ever ask for. So, to express my gratitude and to fulfill a final wish of a man who has given me so much – I am giving him his final words, his closure he could not say himself.
This is the final letter from Craig Kozicki to all of you.
“I want to thank all of you for coming today to celebrate my life. I told Shelly that I wanted a party, although I’m pretty sure this is not taking place at the VFW hall with cases of beer as I had suggested. Nonetheless, I hope this gathering has a joyful tone providing opportunity for reflection. I understand of course that grieving is a natural part of the process, but I truly hope there will be many more smiles than tears today.
And here’s why…
I have lived a full life – maybe not in the essence of time – but definitely in the richness of my experiences and relationships. It is easy to say that dying under these circumstances is unfair, and I would be lying if I said at times I don’t feel saddened by what I am going to miss in the future – things like traveling with Shelly or watching Emily and Kyle have a family of their own. I can promise you though, that I don’t feel cheated as life has given me many gifts that I am eternally grateful for. Some of these gifts exist as fond memories, while others are simply the people who have touched my life.
When I think about the events that have shaped the person I am or the memories that have brought me happiness – I am overwhelmed with the selection. I was born into a loving home and as I grew up, I was not only surrounded by an affectionate family, but also happily occupied with friendships comprised of inside jokes, late nights, softball games, nicknames and a few bad decisions here and there. Then, I met Shelly and learned that my bad decisions weren’t quite as funny to her as they were to my buddies. In all seriousness, I fell in love with her and proposed six weeks after our first date. The kindness, devotion and passion she possessed when I met her, has been unwavering in our 28 years of marriage. In fact, her loyalty has only been strengthened as she has nurtured me through this illness and inspired other caretakers and patients alike. In 1985 Shelly gave me the gift of a daughter, who I have adored since I first laid eyes on her. She has been a constant ray of sunshine in my life and has always been optimistic, providing me stability at any moment of weakness. Through all her endeavors, she has made me very proud. In December I also gained a son. I love Kyle like he is my own and trust he will take care of my girls for me when I no longer can.
I have lived long enough to meet many people who changed my life forever for the better. People who made life worth living and worth fighting for – people like all of you. For that I consider myself lucky.
I am so grateful for the support and strength you all have given to me and my family. I am grateful for talented doctors, compassionate friends, a warm family and helpful neighbors. Thank you from the bottom of my heart for making a difficult situation as easy as it could possibly be. I could never fully explain what your cards, blog entries and phone calls have meant over the years, but I ask for your continued support of my family and of each other when I am gone. I have always been humbled by the idea of people calling me a hero, when in fact it has been the effort of all of us together.
I want to come to a close with a quote that I am sure you all will feel is appropriate, as it comes from one of my favorite movies - Rocky. I feel it not only reflects my personal battle, but also can inspire you to use today as closure to begin the healing process. Rocky said, “It ain’t about how hard you hit, it is about how hard you can get hit and keep moving forward.” Find comfort in those words and in knowing that I will always be with you in your memories – and I will live in your hearts and through the stories you tell.
If I could leave you with one piece of advice, it would be that you cannot control the hand you are dealt, but you can control what you make of it. As I like to say, “it is what it is,” so appreciate and live for every moment and take advantage of every opportunity. I wish each of you the same happiness that has filled my life so completely. I’d like to hope, as you move on, that you think about me every once in awhile, because I will never forget what we have shared or how each one of you has uniquely touched my life.
I love you all in this life and the next,
Craig”
We wish we could be there with you to celebrate Craig's life but know that we will be thinking of you. You have so many great people that love you and still love Craig. He was a great person. I will pass on a memory poem that we had printed for our many friends at Lauries funeral. To me, this is how Craig was.
WHEN I MUST LEAVE YOU
When I must leave you for a little while
Please do not grieve and shed wild tears
And hug your sorrow to you through the years.
But start out bravely with a gallant smile,
And for my sake and in my name
Live on and do all things the same,
Feed not your loneliness on empty days,
But fill each waking hour in useful ways,
Reach out your hand in comfort and in cheer
And I in turn will comfort you and hold you near,
And never, never be afraid to die,
For I am waiting for you in the sky!!
Our love to you June
Shelley, I'm so sorry to hear about Craig.
In regard to your observation - yes, one day it will get easier but that's not to be for a while. Though Craig's moved on, your journey continues. One day your feet will be back in the sand, but for now just hang tight, rely on love and grace to carry you forward, and take things one day at a time. I know from losing my best friend and wife of twenty years to cancer that's one thing we had perfected by the end - living one day at a time…
-------------
One night a man had a dream. He dreamed
he was walking along the beach with the LORD.
Across the sky flashed scenes from his life.
For each scene he noticed two sets of
footprints in the sand: one belonging
to him, and the other to the LORD.
When the last scene of his life flashed before him,
he looked back at the footprints in the sand.
He noticed that many times along the path of
his life there was only one set of footprints.
He also noticed that it happened at the very
lowest and saddest times in his life.
This really bothered him and he
questioned the LORD about it:
"LORD, you said that once I decided to follow
you, you'd walk with me all the way.
But I have noticed that during the most
troublesome times in my life,
there is only one set of footprints.
I don't understand why when
I needed you most you would leave me."
The LORD replied:
"My son, my precious child,
I love you and I would never leave you.
During your times of trial and suffering,
when you see only one set of footprints,
it was then that I carried you."

Craig and I walking side streets in downtown Brugge, Belgium, January, 2006. Craig was my big brother on this particular day (Anthony certainly remembers) as the night before at the Brussels Holiday Inn no one told me that Duvel Beer is 12% alcohol. A great week of training and experiencing Brussels, Antwerp and Brugge.
The Craigism from that weekend - "Hey, I figured you're a safety guy, you should know to read the label on the bottle".
I miss you Craig.
Tom.jpg)
PS - As happens with every blog entry, future blog entries bury them. Carol's entry previous to me is very important so I'm encouraging all bloggers in the near future to copy the following text in as I have here. Additionally I've added a permanent link at the top of the menu on the left of this page to get to Craig's tribute grant.
In response to requests about designated memorials, in honor of Craig, you may click on the link below that will lead you to Craig's Tribute page at the Mesothelioma Applied Research Foundation's website. On-line gifts go directly to Craig's Grant Fund to find a cure for Mesothelioma.
http://www.curemeso.org/siteapps/personalpage/ShowPage.aspx?c=kkLUJ7MPKtH&b=3374467&sid=kkI1KfOTKfKQK7NULuE
If you prefer to mail in a memorial, you may do so by writing a check and in the memo linke write Craig Kozicki.
Mail to:
Mesothelioma Applied Research Foundation
PO Box 91840
Santa Barbara, CA 93190-1840
Phone: 805.563.8400
http://www.curemeso.org/
In response to requests about designated memorials, in honor of Craig, you may click on the link below that will lead you to Craig's Tribute page at the Mesothelioma Applied Research Foundation's website. On-line gifts go directly to Craig's Grant Fund to find a cure for Mesothelioma.
http://www.curemeso.org/siteapps/personalpage/ShowPage.aspx?c=kkLUJ7MPKtH&b=3374467&sid=kkI1KfOTKfKQK7NULuE
If you prefer to mail in a memorial, you may do so by writing a check and in the memo linke write Craig Kozicki.
Mail to:
Mesothelioma Applied Research Foundation
PO Box 91840
Santa Barbara, CA 93190-1840
Phone: 805.563.8400
http://www.curemeso.org/
MercyMe - Homesick
From the album Undone
You're in a better place, I've heard a thousand times
And at least a thousand times I've rejoiced for you
But the reason why I'm broken, the reason why I cry
Is how long must I wait to be with you
I close my eyes and I see your face
If home's where my heart is then I'm out of place
Lord, won't you give me strength to make it through somehow
I've never been more homesick than now
Help me Lord cause I don't understand your ways
The reason why I wonder if I'll ever know
But, even if you showed me, the hurt would be the same
Cause I'm still here so far away from home
I close my eyes and I see your face
If home's where my heart is then I'm out of place
Lord, won't you give me strength to make it through somehow
I've never been more homesick than now
In Christ, there are no goodbye
And in Christ, there is no end
So I'll hold onto Jesus with all that I have
To see you again
To see you again
And I close my eyes and I see your face
If home's where my heart is then I'm out of place
Lord, won't you give me strength to make it through somehow
Won't you give me strength to make it through somehow
Won't you give me strength to make it through somehow
I've never been more homesick than now
I've been attempting to generate some kind of significant thoughts about Craigisms for hours now…but I'm just numb…my mind has that term that Craig & I never really understood in school…entropy. A randomness that defies logic. Maybe I do understand entropy now. Anyway…a significant memory finally entered my void cerebellum. Not only memories, but burnt-in visuals.
Sometime around February 1980, months after Craig's old girlfriend dumped him (go figure…that girl must've had problems), Craig started talking about this girl in the Monsanto Credit Union. Craig said she seems to be gawking at him a lot. I told him to ask her out. The shy boy didn't. One day as Spring approached in 1980, this girl walked down our hallway…a lower level hallway in the Phosphates Front Office Engineering Building…a path where no Credit Union person would EVER have to travel. As the girl walked by our office, her head was looking 90 degrees into our office. As soon as Craig & I looked up, her head snapped back forward…pretending the casual visual encounter never took place. I have to chuckle here….Craig asked why would she be walking down our hallway?? My response to Craig…actually, my ONLY response to Craig, was……Duuuuuuhhhhhh!!!
Craig and the girl started dating shortly after that "chance" walkby. In months, Craig & the girl were engaged to be married. I asked Craig was he sure…he said he was. Something he just knew. In October 1980, Craig and Shelly married.
I'll never forget how fast Shelly's head snapped back when Craig glanced up that day in February. Weird for a guy to say this…but...it was "cute". I'll also never forget how fast Craig's response was that Shelly was the "one".
28 years. 34 for me. A person is never really gone while there are still memories. Especially the abyssfull Craig has created for us.
Nas Drovia Skol. Always…as I point up towards the sky. Take care buddy, Randy, Dorean, Rebecca, and Adam

Shelly, I struggle with trying to find the "right" words, but am compelled to reach out and try to join my thoughts and prayers for Craig and you with all of the others coming your way and only hope that they bring some form of peace to Craig, you and Emily.
I am so proud of the "Mesothelioma Applied Research Foundation with the Foundation's annual Volunteer of the Year Award." it is truly deserved. Shelly, you and Craig have touched so many lives. You are truly an example for others who are faced with the challenges that you have confronted and overcome for so long. I know it must be s0 hard to be confronted with this final challenge.
When I was going through my divorce, (horrors to remember) I remember telling my counselor, that I was not a quitter. The response I got was "it is not quitting to go home when the game is over." Craig and his family have fought a tremondous war and won many of the battles. May you find the peace that you all deserve in this final one.